A pdf is also available
Please pray and page me! Call 972-321-0088 and enter your zip code at the beep followed by the "#" key
Is your Zip listed below? 78945 33579 41005 97759 11435 48088 18069 08854 17363 63025 93463 06095 99515 11758 77429 01833 32703 97502 06475 28054 28083 94803 77084 20876 33024 70785 95125 43528 32745 24141 75904 62040 30094 30506 90292 78628 33763 92708 94706 02370 91411 41777 91709 76712 33414 91761 29150 30388 80011 34688 95117 01835 28683 75161 11354 50266 98034 99777 33149 53154 78757 87105 90746 61705 44460 60010 34668 37415 20721 70808 30071 33737 48838 33334 39744 78747 81125 85282 06510 75024 06478 31539 77471 77414 57103 18201 80223 29650 81223 60442 30269 28211 92025 76048 76108 22407 19934 76082 61115 74012 64064 77065 97325 76177 06418 76133 71201 11372 10028 11374 08011 60629 46056 75094 33428 76179 76244 76132 01085 70634 44124 94602 11367 85382 06498 37085 06419 07712 06413 44135 63025 77836 97055 77505 60142 76424 21727 02766 43082 93428 95608 30224 20680 98166 75002 11030 76053 30102 76137 77531 06902 75028 33445 56301 85233 33015 48176 98105 05601 65203 76001 67008 08234 30096 33908 16823 46307 76052 76205 16262 98266**** 19348 01013 91607 85212 76020 92675 77005 78247 04428 34652 85210 77479 78733 75025 75783 08210 45385 40299 77030 44121 89706 63005 38654 61342 75043 04282 50401 20015 01201 88345 29621 97381 52722 73003 33029 96740 77469 48124 36502 30028 30043 75023 426* 27215 95648 76015 94019 76131 34237 78501 76201 76234 75220 75201 76118 75022 75019 314* 03818 75205 76227 75077 76210 75150 75220 86404 92866 76107 76106 95380 37419 91107 76078 76262 76049 75701*** 72023 77027 10016 24503 76247 17363 75240 60443 64790 76266 75080 29212 45133 76051 80482 94952 76116 18972 97305 46582 97303 33186 33016 08015 33426 84093 75254 50010 92620 78957 30014** 76117 76207 76248 46580 75248 76207 28105 43302 831* 75252 30101 76226 76136 75075 75243 76017 75693 81007 777
Zips listed in the order received
* a family birthday ** received at 4:30am! *** received 6.4.07 ****received 3.15.09
|
A Summary
This story begins in January 2004, when I began to experience a series of severe headaches. I had not had significant numbers of headaches up to that point, no more than other people get now and then. But the headaches that started on January 8th were a different matter. They would come out of nowhere and subside just as quickly as they came - lasting only two or three minutes. My wife and I initially thought they were sinus related or tension based, but as the headaches persisted and as I moved up the food chain of specialists, I eventually found myself carrying MRI film to a neurologist’s appointment. It was on 30 January 2004 that I heard the dreadful words, “I’m sorry Mr. Kline, but you have a brain tumor.”
Hearing those words was like hitting a brick wall at 90 mph – my whole world came crashing down in an instant all around me while I stood by helplessly watching. I immediately went to see neurosurgeon Dr. Sam Finn, and heard my first bit of good news within a couple of hours of the bad news. “Yes, you have a brain tumor,” Dr. Finn said, “but it is eminently operable.” He started me on 32 mg/day of the steroid Decadron to reduce the swelling being caused by the tumor. The Decadron also dismissed the headaches and it felt great to feel great.
On 02 February 04, I received a prayer pager from the First Baptist Church of Richardson. When a person prays for me, they call my pager’s number and enter “777#”, the universal code for “someone is praying for you.” Zip Codes are often entered in place of "777" and this is actually preferred, as I can lookup the Zip and see the origin. This pager continues to be a tremendous source of encouragement and comfort, even to this day. I have received thousands of pages at all hours of the day and night, wherever I go.
The tumor was removed during a three hour procedure on 04 February 04. The medical staff at Baylor in Dallas was nothing short of brilliant. They inserted several “ports” into my body and while we conversed, they began to take me under. The next thing I remember was the chief anesthesiologist saying “Jerry, we’re done.” All I could say to him was “fantastic, fantastic.” Two days later, I had an MRI and was pronounced clean by the radiologist and the medical staff. That same day, I went home with strict orders to rest for one week. After a follow up meeting with Dr. Finn, I returned to work nine days after the surgery.
Having learned that my tumor was a grade 4 glioblastoma multiforme (gbm), I began to research brain cancer treatments and to try to figure out how to approach this whole situation. Having the tumor removed was a “no brainer,” given its location slightly above my right ear, but what should I do after surgery? With the help of my wife Kathy, my mother and my brother David, we developed a plan. Our approach was “total war” with no holds barred, no mercy shown and no prisoners taken. We decided to be as aggressive with this traitor as my body would allow.
Post operative treatments consisted of six weeks of conformal radiation therapy with concurrent Temodar chemotherapy. My blood was checked every week during this time. A significant percentage of my hair fell out, but most of it eventually returned.
After this, Kathy and I visited MD Anderson, Duke, and UT Southwestern to identify follow on treatment options for the long haul. We also consulted with gbm survivors, like Dr. Ben Williams. I read articles and books. I spent hours on the internet. I beseeched the Lord for wisdom and direction.
I eventually ended up at the office of Dr. Virginia Stark-Vance, a truly remarkable oncologist who takes an optimistic view of things, even a gbm diagnosis. The plan we elected was to take 14 days of Temodar (a pill), then stop the Temodar for 14 days. I also took Accutane with the Temodar. We then checked my blood to see how my system is holding up, and then the cycle was repeated. Every two months, a MRI was performed, and by the grace of God, I had 21 consecutively clean scans over a 40 month period. One scan was a PET, the others standard MRIs.
A spot was identified from the MRI on 01 June 07. We began hitting this small, suspect area on Monday, 04 June 07, followed by monthly MRIs, and as of the scan of 08 Sept 07, the beast had vanished! Two more rounds of Carbo and Avastin were therefore administered over the next two months, and the monthly scans remained clean, so I returned to bi-monthly MRIs and halted the chemo and Avastin in November 2007.
Another spot was identified from the MRI on 13 March 09. The bombardment of this very small area with chemo began on Monday, 16 March 2009. This spot was eliminated with just one chemo infusion. Two more months of chemo and clean scans followed, but this time I decided to stay on chemo for a fourth cycle. The idea was to keep Carboplatin in my system long enough to kill the tumor once and for all. I was taking a proactive chemo stance, rather than waiting to react to a third tumor occurrence.
Unfortunately, the additional cycle of Carboplatin did not preclude the tumor from returning for a third time, this time a 4mm by 3mm oval, difficult to spot, but easily sacked again using the dynamic duo of Carbo and Avastin. "The spot is not," noted my radiologist after the first round of chemo in April 2010. Slices of my tumor from 2004 were sent to a genetic lab in Arizona. I explored additional meds to take to eliminate the tumor before it tried to make a fourth appearance, but the tumor responded before I did.
November 2010 found me with a fourth recurrent tumor, but the little degenerate was only about 2mm. The radiologist's report referred to a "subtle" area of enhancement seen on the Sagittal and the Axial sequences. The fact that it is seen on two sequences means it's less likely to be an artifact. It was definitely a difficult call, but when in doubt, wash it out, I say. We hit it with CPT-11, Carboplatin and Avastin immediately and continued until three clean monthly MRIs were obtained. All chemo was discontinued and I returned to bi-monthly MRIs in February 2011, but my respite was short-lived; the pig came back for encounter number 5 In June 2011. BCNU was the chosen agent of destruction this time. Nearly one year was required for my platelets to recover from two BCNU infusions.
The swine hit the replay button once more in July 2012. Procarbazine and Carboplatin were initially used to address this 3mm thread. It did not change structurally for one year, and a PET scan from September 2012 showed no abnormal glucose update. The radiologist’s report from February 2013 stated that this area of abnormal enhancement had been progressively decreasing since at least October 2012. But all of this changed in July 2013, when the tumor showed a significant progression from one month ago. This prompted a second surgery in August 2013 and resulted in clean MRIs in October 2013 and December 2013. I am at present taking CPT-11 chemo as a follow-up to the second surgery and getting scanned every 4-6 weeks, continuing at least through 2014.
This story has been captured in paperback, eBook and Audio Book formats and is available on amazon.com, bn.com and iTunes (Search for An Unremarkable Man). All net proceeds from sales are donated to brain tumor organizations, such as the Legacy Brain Foundation and the Mission 4 Maureen Foundation.
Through all of this, I have enjoyed the unfaltering support of my family, several churches, friends, neighbors, co-workers, cancer survivors. More than this, I have seen the Lord at work as never before; mostly working on me and my fears. He is my strong tower, my Good Shepherd and my Abba Father who treats me with compassion and tenderness. I would not want to go through this again, but my faith now has an experiential component that provides a validation of the Bible that I have been studying most of my life. I bow my knees and thank the Lord Jesus Christ!
|